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Charles, an adult who has battle MS since he was 16, started a podcast, MSB Podcast, as a way to raising awareness about MS for youth. Since the start of his podcast in 2006, Charles has done almost 400 shows. He also studied media relations in college in order to deepen his understanding of where the media corporations were, what happened to people and how, and how to position himself and MSB Podcast in order to help MS patients. He wants to help all handicapped people by giving them a voice which is, sadly, never heard in the media.

He says that the creation of MSB Podcast has helped him deal with his MS instead of trying to “bury it in his past.” Before creating the podcast he said that he was in denial about his MS. He used to dance, play the guitar, and go on hikes and he thought that due to the several attacks that he has had due to his MS, the third of which left him walking on a cane, he would never do any of that again. Now he has learned to deal with the situation and learned to live his life with MS.

His advice to young MS patients is to “deal with the situation and your life will be better”. He says that they should especially watch what they eat by staying away from processed foods and genetically modified crops and eating healthy – such as organtic vegetables, meats from properly raised animals, free range fowl, and fish from rivers and oceans. 

Jeff, a 36-year-old local TV commercial producer from Louisville, Kentucky, was diagnosed with Multiple Sclerosis on January 22nd, 2009. Although the last 8 months have been hard for him, he still has a positive outlook on his life with the disease.

Jeff started showing the symptoms of MS in late December of 2008. He was walking like he was drunk – staggering, stumbling, and falling over when he tried to walk. He was scared about these symptoms, so he decided to go to the doctor. 

After several weeks of tests, including an M.R.I. test of his brain, a spinal tap, and electrodes tests, and worrying about what could possibly be wrong with him, Jeff learned that he had Relapsing/Remitting MS.

He then had to figure out a treatment plan with his neurologist. He started on solumedrol, which is a high dose of steroids, for 3 days. He has since then had 2 more steroid IV treatments to help with his day to day symptoms. He also has been on Betaseron shots every other day. 

Jeff says that everyday he feels his MS – whether it is a tingling sensation in one of his limbs, a cold sensation on the right side of his face, or his left foot feeling like it’s asleep for hours. Since he has Relapsing/Remitting MS, he has minor symptoms for extended periods of time and occasionally he will have a flare up which will affect him for a few weeks.

He advises newly diagnosed MS patients that being diagnosed is not the end of world. He does advise them to educate themselves about MS. 

He also says that the newly diagnosed should slow down and don’t overdo anything, but he still says that they have fun. 

His fight with the disease has inspired him to create a blog, one that has received over 2,300 hits since he started it: http://learningtolivewithms.blogspot.com/. He says that blogging has been very therapeutic for him, and encourages other MS patients to read positive MS blogs or blog themselves. 

He encourages those who have questions or want more advice to e-mail him at jeffcats@msn.com

For those that love live music …

New Almaden Music Festival, a music festival benefiting MS Awareness, will be held in San Jose on Saturday, August 8th.

 

There will be performances by:

Medicine Road: 1:00 – 2:00

Taboo Voodoo: 2:20 – 3:20

Root: 3:40 – 4:40

Corduroy Jim: 5:00 – 6:15

Old Dead Bug: 6:45 – 8:30

Grampa’s Chili: 8:45 – 10:15

All Star Jam: 10:15 – 10:30

 

Donations will be accepted:

-For event: $15

-For Tamale Plate: $8

-For beer: $3

-For non alcoholic drinks: $1

-For t-shirts: $15

 

 Location:

New Almaden Community Center

21727 Bertram Rd.

San Jose, CA

 


For those that love eating good food for a good cause …

 

Scott Weitze is hosting a Dinner party in San Francisco to raise money for MS research on Saturday, August 8th at 7 PM.

 

Different foods offered from a variety of resteraunts:

Range: Coffee-rubbed Pork Shoulder

Tartine Bakery: Morning Buns

Bi-Rite: Salted Carmel Ice Cream

Truly Mediterranean: Lamb Schawerma

Arinell’s Pizza: Wonderfully Greasy Pizza

Monk’s Kettle: Giant Homemade Pretzels

Ti Couz: Buckwheat Crepe

Dosa: Paper Masala Dosa

 http://tinyurl.com/5thdinnerevent


Cost:

The cost is ~$28-32, with proceeds from this event going to The Myelin Repair Foundation, a non-profit medical research foundation dedicated to accelerating the discovery and development of effective treatments for millions suffering from multiple sclerosis.

 

For more information about the event visit the Facebook page.


Please RSVP by August 6th: http://www.facebook.com/event.php?eid=107891055278&ref=mf


Sonnia, who has battled MS for 9 years, has a positive attitude about her MS. Instead of letting the disease get her down, she fights to stay on her feet and lead an active life. She is a strong person, even raising her grand-daughter alone. 
Her advice for those with MS is fight their MS head on and never let it get to you. As she states, “I will never give into MS. I fight every day … I will never let MS take me without a big fight!” 

I have started this blog in order to reach out to college-aged students who have MS, or have family members or friends with MS. I know that young people can feel helpless or scared when they get diagnosed with MS, so I hope that this blog will be a place where young people can find stories about those affected by MS and how they dealt with it, receive mentorship from older people who have had MS for a long time and have advice they can give younger people who have just been diagnosed or who have only been living with the disease for a short time and who have questions, hear about different media forms that relate to MS, and provide them the inspiration they need to have a positive outlook about their life even if they are affected by the disease.

I would love to hear your feed-back.

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