You are currently browsing the category archive for the ‘Stories and Advice’ category.

Morris, an 18-year-old from England who was diagnosed with MS 3 years ago, has a positive, spiritual outlook on his MS. As he claims, “Being Jewish, we strongly believe that everything that happens is for the best and that g-d does it through love.” His story of his past three years of MS reflect his great outlook on his life with MS.

Three years ago, during his last year in high school, he had trouble gripping his pen when he was trying to write during his exams. People did not believe that he was really having this problem, they thought that he was just triyng to get out of his exams. 

Soon his problems got worse though, and he had to get help doing things like getting dressed. He went to his doctor, who dismissed these problems, claiming it was probably nothing. A few weeks later, his mother took him to the hospital where they tested him for various conditions.

From these tests, Morris was diagnosed with a condition that was not MS, that he was told would repair itself within a year. (Morris does say that MS was discussed as a possible condition, but that it had been dismissed.)

After this, Morris started college in Newcastle. After a few months, he had to go home for a short break because things had gotten bad. His mother especially noticed the change when he came back home from being out one night, and his legs gave out and he fell to the floor.

His mother again took him to the hospital  and was adament that he needed to be rechecked. His tests started again, and after more blood tests, MRI scans, and a lumber puncture, he was diagnosed with MS. The morning after his diagnosis he was hooked up to a drip for a few days and was administered steroids. He was able to walk after a few hours.

Today, he takes daily copaxone injections and he hasn’t had an attack in three years. Although his leg can tire after long walks and he can have a “bit of a jumpy leg,” he still goes to the gym everyday along with working full time and having his own small vending business. He also sings at weddings with his father’s band.

His message to anyone who has MS or to anyone who has just been newly diagnosed is “don’t think the world has come to an end.” As he states, “My life has remained almost completely unchanged. I love my job and love life! It might be hard at the beginning to come to terms with, which of course is entirely normal, but once you get used ot the symptoms you will be able to lead a happy and fulfilled life. It is important to look after yourself, eat healthy, keep active, and get plently of sleep.”

Tara, a mother of three, was diagnosed with Multiple Sclerosis in March 2007. Since then she has had to deal with the multitude of symptoms that come with MS, and had to learn how to deal with how to live with MS.
 
She likens dealing with accepting her diagnosis to the stages of grief.

She says that first she went through denial, in which she felt the doctors were wrong and that MS was just an illness or phase and she would get through it.

Then, she said, came sadness. She said she was sad that she had MS and that she was scared of what the future held and the fact that she knew that she would have this disease for the rest of her life.

Then she dealt with anger. She was angry at the doctors because she felt they took too long to give her an answer, and she was also angry that this was happening to her.

She went through a “Why Me” phase for awhile before finally coming to the acceptance phase, although she says that she is not sure one ever truly gets through the acceptance phase.

As she states, “There are times that you accept MS because maybe things are under control or maybe you are learning to cope and deal with the symptoms, or the changes in your life that you have to deal with. However, every once in awhile there is a time that the MS sneaks up on you and all of a sudden you find yourself repeating all the grieving phases all over again.”
 
Her advice to newly diagnosed MS patients is to never give up or let MS control them. As she states, “There are times it will be stronger than you but keep fighting it.”
 
She also advises the newly diagnosed to learn everything they can about the disease, and take good care of themselves. She says that they should eat well, take vitamins, take time for themselves to relieve stress, and, most importantly, take their shots. She says that taking their shots is the only thing there is that will help protect them from permanent damage and will lessen the exacerbation’s.
 
She claims that having a positive attitude is key: “Don’t dwell on the bad stuff. Focus on the good and what you can do to fight MS.” She encourages young MS patients to find good support, which she says may be hard at times to find. She describes MS as an invisible disease which may be visible for only a few days in which MS patients may have trouble walking and need to use a cane or wheelchair, and then the next day they may be walking fine. “People don’t understand that,” she says, “They don’t see what is going on inside of you.”
 
She goes on the say, “Some family and friends will never understand nor try to understand, and they may leave your side. But your true friends and family will learn to understand the best they can and will stay by you. You can allow yourself to get angry at the disease but don’t allow yourself to be angry at the world.”

Ken, who is going to start college this spring, sees his father as a “true hero” in his eyes. This is due to the fact that Ken’s father has Multiple Sclerosis, yet still continues to work hard and provide for his family.

 

His father has been a hard worker all his life – from helping to build homes and run his father’s warehousing business (which entailed doing heavy labor) as a teen while starting every game on his high school football team, to graduating from college with a 4.0.  He also ran a trucking business for years.

In his free time, Ken’s father enjoyed parachuting and deep sea diving. He also held a pilot’s license.
 
In 2000, he fell through a pier and broke his tail bone, herniating two discs. He had a spinal fusion that same year, and was diagnosed with MS. Since then, he has continued to work doing hard labor. He currently works as a driver for a company, often working long hours.
 
Ken says that his father often has had trouble finding jobs due to the fact that most employers will “shoo him away if they know he has MS.” His father also is in pain a lot due to his MS. Some day he cannot walk, and he has lost some vision. He also used to get fevers from some of the medication that he would have to take. Ken said that through all of this, his father still went to work to earn money for his family.
 
Although his father has had a hard life, he is strong-willed about his MS. According to Ken, his father “has never let anything bring him down in life.” Ken also states, “My dad really has no fear. I’ve seen him lift 500 pound containers by hand at work.”  
 
Ken’s father is an inspiration. His strength in the face of a difficult and life-changing disease like MS is truly amazing.
 

 

Twitter Updates

Error: Please make sure the Twitter account is public.